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A Clinical Diagnosis of Rare EDS Without Genetic Cause - What Next? - Dr. Fleur van Dijk
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9: EDS ECHO Community Leaders & Educators: 'Effective Doctor Appointments' by Assoc. Prof. Dr. Alan Hakim & Shani Weber
Presentation PDF: 'Effective Doctor Appointments' by Assoc. Prof. Dr. Alan Hakim & Shani Weber
8: EDS ECHO Community Leaders & Educators: 'Teaching Basics' by Shani Weber
Presentation PDF: 'Teaching Basics' by Shani Weber
7: EDS ECHO Advocacy: 'Social Media' by Erin Simons
Presentation PDF: 'Social Media' by Erin Simons
6: EDS ECHO Advocacy: 'Understanding the Research Process' by Amanda Miller
Presentation PDF: 'Understanding the Research Process' by Amanda Miller
5: EDS ECHO Advocacy: 'Political Awareness & Lobbying' by Shani Weber
Presentation PDF: 'Political Awareness & Lobbying' by Shani Weber
4: EDS ECHO Advocacy: 'Fundraising' by Danielle Hohlier & Owen Moore
Presentation PDF: 'Fundraising' by Danielle Hohlier & Owen Moore
3: EDS ECHO Advocacy: 'How to Present Information on EDS and HSD 101' by Assoc. Prof. Dr. Alan Hakim
Presentation PDF: 'How to Present Information on EDS
Ehlers-Danlos syndromesEhlers-Danlos syndromes are a group of inherited connective tissue disorders that can affect the skin, joints, blood vessels and other tissues.More info and HSDHypermobility Spectrum DisordersHypermobility Spectrum Disorders describe symptomatic joint hypermobility that does not meet the criteria for a specific type of EDS or another condition.More info 101' by Assoc. Prof. Dr. Alan Hakim
