Resources
Browse videos, downloads and helpful information.
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EDS ECHO Caregivers - Session 9
Dr. Valerie Iovine Rogers, 'Encouraging Independence with Compassion' (PDF)
EDS ECHO Caregivers - Session 7
Dr. Jane Green, 'EDS
Ehlers-Danlos syndromesEhlers-Danlos syndromes are a group of inherited connective tissue disorders that can affect the skin, joints, blood vessels and other tissues.More info HSDHypermobility Spectrum DisordersHypermobility Spectrum Disorders describe symptomatic joint hypermobility that does not meet the criteria for a specific type of EDS or another condition.More info and Neurodivergence: Understanding, Support & Care' (PDF)
EDS ECHO Caregivers - Session 6
Dr. Laurie Bilyeu, 'Advocacy Skills for Families & Communities' (PDF)
EDS ECHO Caregivers - Session 5
Dr. Juliette Harris, 'Advocacy Skills for Families & Communities' (PDF)
EDS ECHO Caregivers - Session 4
Dr. Sarah Cohen-Solomon, 'Managing Transitions Across the Lifespan' (PDF)
EDS ECHO Caregivers - Session 2
Grace Kully, 'Communicating Effectively with Healthcare Providers' (PDF)
EDS ECHO Caregivers - Session 1
Jeannie Di Bon, 'Embracing the Diagnosis & Building Resilience' (PDF)Resource Links: 'A unique collaborative model providing supportive and self-advocacy tools…
