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TIME (EST): SESSION & TITLE: SPEAKER(S): 09:30 - 09:40 Welcome & Housekeeping Lara Bloom 09:40 - 09:55 Introduction on hEDS and HSD Dr. Clair Francomano 09:55 - 10:05 Welcome from FDA staff Dr. Cynthia Rothblum-Oviatt…
TIME (EST): |
SESSION & TITLE: |
SPEAKER(S): |
| 09:30 - 09:40 | Welcome & Housekeeping | Lara Bloom |
| 09:40 - 09:55 | Introduction on hEDS and HSD | Dr. Clair Francomano |
| 09:55 - 10:05 | Welcome from FDA staff | Dr. Cynthia Rothblum-Oviatt |
SESSION 1: The Diagnostic Odyssey |
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| 10:05 - 10:20 | An introduction to the Diagnostic Odyssey | Dr. Colin Halverson |
| 10:20 - 10:30 | Diagnostic Odyssey - hEDS | Emily Rubenstein |
| 10:30 - 10:40 | Diagnostic Odyssey - POTS | Caro Frederiks |
| 10:40 - 10:50 | Diagnostic Odyssey - MCAS | Danielle Vaccaro |
| 10:50 - 11:00 | Diagnostic Odyssey - Pain | Brianna Cardenas |
| 11:00 - 12:00 | Panel Q&A | |
SESSION 2: Living with hEDS and HSD |
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| 13:00 - 13:15 | Introduction on Living with hEDS and HSD | Dr. Alan Hakim |
| 13:15 - 13:25 | Living with hEDS and HSD - POTS | Francie Fitzgerald |
| 13:25 - 13:35 | Living with hEDS and HSD - MCAS | Courtney Rabb |
| 13:35 - 13:45 | Living with hEDS and HSD - Pain | Maggie Buckley |
| 13:45 - 13:55 | Living with hEDS Including GI Issues | Harry Radcliffe |
| 13:55 - 14:05 | Living with hEDS and HSD as a Caregiver and Parent | Dr. Ashley Denmark |
| 14:05 - 15:05 | Panel Q&A | |
SESSION 3: Treatments for EDS and HSD |
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| 15:25 - 15:40 | Introduction on Current Treatment Landscape | Dr. Anne Maitland |
| 15:40 - 15:50 | MCAS - Treatment possibilities through research | Scarlett Eagle |
| 15:50 - 16:00 | Treatment: Pain, An Integrated Approach | Dr. Cortney Gensemer |
| 16:00 - 16:10 | Treatment: GI | Dr. Isabelle Brock |
| 16:10 - 16:20 | Treatment: Adaptive Aids & Devices to Help with Symptoms | Mars Lombardi |
| 16:20 - 17:20 | Panel Q&A | |
| 17:20 - 17:30 | Summarise & Close | Lara Bloom & Clair Francomano |